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Education • Diagnosis • Solutions

EDS Wellness is a 501(c)(3) non-profit organization promoting health education, integrative healthcare, and wellness strategies for living well with Hypermobility Spectrum Disorders (HSD), such as Ehlers-Danlos syndromes (EDS), other disorders of the connective tissue, and related conditions such as Mast Cell Activation Syndromes (MCAS), Dysautonomia and more.

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The content shared throughout the EDS Wellness site is currently being edited and updated to reflect the revised diagnostic criteria for all Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) published on March 15th, 2017. We’ve also been working to add more tangible resources to the EDS Wellness website, such as ‘The Global Alliance for Hypermobility Spectrum Disorders Providers (GAHSDP),’ and an e-learning platform that wil allow us to continue broadening the scope of available information and resources for both patients and healthcare providers. If you have questions concerning the content contained on our site or other related questions, please email [email protected].

What is Ehlers-Danlos syndrome (EDS)?

Once you have received an EDS diagnosis or even if you think you may have EDS, many people will ask, “What is Ehlers-Danlos syndrome?”  Having knowledge about what EDS is and how it may “look” both on the outside and on the inside of the body, is one the best things that someone new to EDS can do for themselves.  Taking the time to gain a strong understanding of EDS, has helped numerous people find the appropriate treatments and therapies, as well as learn ways to handle the different aches, pains and issues that may arise.  Ehlers-Danlos syndrome (EDS) is a group of heritable connective tissue disorders caused by various genetic defects to the structure and function of the collagen protein used to make our connective tissues. These disorders can cause a wide variety of complications throughout all body systems…Learn More

Living with Classical Ehlers-Danlos syndrome – Sara Geurts’ Story about “Loving [her] Skin”

We first shared Sara's story, '#EFFYourBeautyStandards Sara Geurts'; Living with Classical Ehlers-Danlos syndrome (CEDS),' last year. Sara's incredible journey about living with Classical Ehlers-Danlos syndrome (cEDS) has continued to travel around the world --...
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Today We Celebrate How Far We’ve Come, Our Journey to Get Here, and a Brighter Future that We are Helping to Create

Today is about being the change that we wish to see in our world. It's also about being the change we wish to see in the broader chronic illness community, and in the entire medical field.  It's about leading by example and collaborating with our partner...
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If You Could Tell a Healthcare Provider One Thing, What Would it Be?

We are preparing materials for our 2017 Physicians Learning Conference that begins today and we need your help! If you could tell a healthcare provider one thing, or one important piece of information that is useful to remember or know (in general) about patients with...
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‘The elastic girl: Living with Ehlers-Danlos Syndrome’ – The Real, Raw and Truthful Reality of Life with EDS

A few of my friends have shared this article with me, but it took me a few days to finally read it. It's often hard for me to read everything on EDS because the EDS Wellness' projects have been all-consuming lately and I haven't had much time for anything extra....
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We Need Your Help! EDS Wellness is Seeking Support for Our Ground-Breaking Integrative Physicians Learning Conference!

EDS Wellness’ 2017 Physicians Learning Conference -  'Integrative Healthcare Strategies for Patients with Chronic Pain and Multisystemic Chronic Illness’ is right around the corner! EDS Wellness’ 2017 Physicians Learning Conference will bring some of the top...
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EDS Wellness HelpLine

Contact Form

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For general questions regarding Ehlers-Danlos syndrome (EDS), you may email one of our Helpline volunteers at [email protected], or use the contact submission form below. We aim to respond within 24-48hours. To learn more about EDS Wellness’ Helpline, please go to About the EDS Wellness HelpLine.

The EDS Wellness HelpLine phone line is available on certain days each week, based on the availability of our volunteers. The HelpLine also offers limited one on one private calls, scheduled in 15-minute time slots. Please make sure to check when the HelpLine phone line is open, as the schedule changes each week. To schedule a HelpLine appointment, please click below to schedule a phone appointment.

“Kendra has a fantastic combination of personal experience, knowledge, and passion that all work so well together in providing the EDS community with resources they can use immediately to help improve their lives. She is a great advocate for the EDS community when talking with physicians and medical providers and has done wonders in educating and helping others to understand what so many patients with EDS suffer through on a daily basis.”

Chris Gnip

DPT, Physiotherapy Associates

OUR SERVICES

PERSONAL HEALTH EDUCATION AND INTEGRATIVE WELLNESS COACHING

A health/wellness coach is a wellness expert, a certified health educator, or both, and a supportive mentor who helps foster lifestyle change and behavior modifications, while also providing you the motivation, encouragement, and necessary steps to take a proactive role in all aspects of your health and overall well-being. Your wellness coach equips you with the tools, education, and support needed to reach your goals by focusing on all components of your health and life — financial, emotional, social, mental, physical, and nutritional.

Being “healthy” is not just about nutrition and fitness – total wellness encompasses all aspects of an individual’s life. 

Working with a wellness coach will enable you to sharpen your skills when it comes to fitness, nutrition, and identify barriers to your health that may exist in other aspects of your life. You will learn to balance your wellness needs to fit your lifestyle, your schedule and find what works best in collaboration with your family and those around you. Every individual is different — there’s not a one size fits approach to how we all should live our lives, gain strength, improve our health and overall well-being. Therefore, your wellness coach will customize a plan that will work best for you based on your unique biochemical and psychological needs while also identifying the unique barriers you face to achieving your health goals. You will be inspired and empowered through the support of your wellness coach while being held accountable through which perseverance you will be lead to succeed!

EDS Wellness focuses on the seven pillars of wellness when working with clients and on related projects. The seven pillars of wellness include:

 

  • Spiritual
  • Intellectual
  • Emotional
  • Social
  • Physical
  • Environmental
  • Occupational
Free Wellness Coaching Session (new clients only!)

Free Wellness Coaching Sessions are available to new clients only! Working with Kendra as your wellness coach is similar to working with a counselor, but with a powerful action element. Holding your agenda in the forefront, she will listen to what you are saying, and be mindful of what you are not saying. Kendra will also challenge you when appropriate, be your biggest health advocate, and help align your life to support your health and wellness goals. During your free 1/2 hour coaching session, Kendra will help identify:

  • Identify your wellness Vision
  • Go over short and long range SMART Goals
  • Motivators
  • Obstacles

Kendra will follow-up with a written synopsis from your session outlining the highlights related to identifying your wellness vision, short and long range SMART Goals, motivators, and obstacles/barriers to your improving your health and overall well-being.

 

Personal Wellness Coaching

Working with a health and wellness coach is similar to working with a counselor, but with a powerful action element. Holding your agenda in the forefront, your wellness coach will listen to what you are saying, and be mindful of what you are not saying. You will be challenged when appropriate, while also having the unconditional support of your biggest cheerleader. Your wellness coach will help foster necessary behavior modifications and lifestyle change, that will shape your health and over well-being, help you achieve your goals, and live a healthy and more fulfilling life — one that you deserve.   Individual Wellness Coaching Session – 1 hr per session During your individual coaching session, Kendra will help you:

  • Identify your wellness Vision
  • Go over short and long range SMART Goals
  • Identify strengths
  • Identify motivators
  • Identify obstacles/barriers to achieving your SMART goals

Kendra will follow-up with a written synopsis outlining the highlights from each session, including actions steps related to helping you move forward in achieving your SMART Goals. Personal Wellness Coaching Package – Nine sessions total with e-mail support. Sessions last 45-60 minutes.  During your coaching session, Kendra will help you:

  • Identify your wellness Vision
  • Go over short and long range SMART Goals
  • Establish a plan to achieve your wellness vision and SMART Goals
  • Identify strengths
  • Identify motivators
  • Identify obstacles/barriers to achieving your SMART goals

To ensure your success, Kendra will follow-up with a written synopsis outlining the highlights from each session, including actions steps related to helping you move forward in achieving your SMART Goals and wellness vision plan.

 

Individual Moving Naturally with Hypermobility Sessions

Individual Moving Naturally with Hypermobility sessions focuses on natural movement patterns and corrective exercise principles, including aspects of pilates and yoga. Each session will help develop your understanding of how to move naturally with hypermobility, find ways to move through life with more ease and less pain, and empower you to take control of your overall health and well-being.

 

Personal Patient Advocacy Sessions

What is a Patient Advocate? A patient advocate is a professional that has developed an expertise in navigating the complex healthcare system through experience and education. A patient advocate provides direct support services to patients and their caretakers by ensuring that the patient’s voice is represented in their medical care while providing the information a patient needs to implement informed decision making. There are patient advocates established at hospitals who provide their services to patients free of charge; however, these individuals usually work for a hospital’s risk management department. Patient advocates that are employed by hospitals or a  healthcare system  provide mediation between patient’s complaints and the hospital, to help minimize a hospital’s liability. These patient advocates are not trained in your specific condition, nor do they represent you outside of the hospital. Additionally, there are organizations that offer free advocacy resources but may only serve specific issues. Many free patient advocate services are not local or specific to your needs/condition. Free services outside these situations are often only provided to patients who meet the federal poverty guidelines. How would a patient advocate help me? A patient advocate is committed to helping you by providing the information and resource connections that are needed to meet your healthcare needs most effectively. Also, patient advocates are empathetic to your situation, and understand the overwhelming emotions that come with navigating the complex health care system; thus, having a patient advocate can also help alleviate any un-needed stress. Working with a private patient advocate means that you have someone to navigate your healthcare needs that have only your best interest in mind. Patient Advocates usually only take cases that they are comfortable supporting.

Make an appointment:

 

Must pay at the time of booking the appointment. Refunds are only provided if cancellation is received within 24 hrs prior to appointment day and time. No exceptions.

Do you have a question about personal health education and wellness coaching? Send us a message below!

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PRINT MEDIA RESOURCES AND MATERIALS

EDS Wellness collaborates with other organizations and healthcare practitioners on various print and digital media projects associated with Ehlers-Danlos syndrome (EDS) and related conditions, to provide information and resources Read More…

PROFESSIONAL SPEAKING AND TRAINING

Professional speaking, training, and education on Ehlers-Danlos syndrome (EDS), other hypermobility syndromes, connective tissues disorders, and related chronic medical conditions. Additionally, EDS Wellness collaborates with Read More…

HEALTH EDUCATION AND PROGRAM DEVELOPMENT

Health education and program development services are primarily focused on Ehlers-Danlos syndrome (EDS), other hypermobility syndromes, connective tissues disorders, and related chronic medical conditions. Additionally…Read More…

DIGITAL MEDIA RESOURCES AND MATERIALS

EDS Wellness collaborates with other organizations and healthcare practitioners on various print and digital media projects associated with Ehlers-Danlos syndrome (EDS) and related conditions, to provide information and…Read More…

EDUCATIONAL VIDEOS AND VIDEO SERIES

EDS Wellness collaborates with other organizations and healthcare practitioners on various educational video and video series projects associated with Ehlers-Danlos syndrome (EDS) and related conditions, to provide…Read More…

CONFERENCES AND RETREATS

EDS Wellness collaborates with other organizations and healthcare practitioners on integrative health and wellness conferences and retreats associated with Ehlers-Danlos syndrome (EDS), other hypermobility syndromes…Read More…

PHYSICIAN AND HEALTHCARE PROVIDER PROFESSIONAL EDUCATION

EDS Wellness, Inc. collaborates with other organizations and healthcare practitioners, facilitating continuing education and discussions on integrative healthcare and managing patients with complex chronic medical conditions…Read More…

WEBINAR, PODCAST AND SEMINARS

EDS Wellness collaborates with other organizations and healthcare practitioners on webinars, podcasts, and seminars associated with Ehlers-Danlos syndrome (EDS), other hypermobility syndromes, and other chronic medical…Read More…

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