Our board of directors consists of 5-8 professionals who have expertise in various areas of business. We are working to add the names and professional bios for all of our board members and a complete list will be provided soon; however, a few of our board members are listed on our Board of Directors page. Similarly, the names of the individuals on our Professional, Medical and Patient Advisory Boards will be updated as well.
If you are interested in serving on our board of directors in the future, please submit your application via the contact form at the bottom of the page. You can also send an email along with your bio and resume or CV to [email protected]. Alternatively, if you are interested in volunteer opportunities, please visit our Volunteer Application page.
To learn about our healthcare provider referral networks and professional membership options, or to join, please visit Healthcare Provider Referral Networks and Professional Membership Registration.
If you have additional questions, please email [email protected].
Sample Board of Directors Invitation Letter:
EDS Wellness, Inc.
7717 Maryknoll Ct.
Bethesda, MD. 20817
January 3, 2017
City, State Zip Code
In February of 2016, I founded EDS Wellness to promote health education, public health initiatives, integrative healthcare, and wellness strategies for living well with hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS) and their comorbid conditions. EDS Wellness has touched the lives thousands of hypermobility syndrome patients through our numerous projects. There is still work to be done! Hypermobility patients continue to suffer due to misinformation, medical mistakes, and from a general lack of awareness of these diseases.
EDS Wellness is in the process of forming our first Board of Directors. I would like to formally extend you an invitation to join our board. I would be honored to work with you as we embark on this exciting and ground-breaking initiative for the hypermobility syndromes community. You are being considered for a position on our Board of Directors, because of your professionalism, experience, and stewardship.
EDS Wellness Mission:
EDS Wellness is a 501(c)(3) non-profit organization promoting health education, integrative healthcare, research and wellness strategies for living well with hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS), and related conditions. We fulfill our mission through the creation of print and digital media resources, professional education, seminars, webinars, conferences, wellness coaching and patient advocacy.
EDS Wellness Vision:
EDS Wellness works in conjunction with healthcare practitioners and other health care organizations to teach individuals living with EDS and other chronic, invisible illnesses how movement, nutrition, and mind-body techniques can improve their quality of life and overall well-being.
About Hypermobility Syndromes
The exact cause(s) of joint hypermobility is unknown. “Loose joints” are believed to be caused by various mutations to one or more of the components that help build our connective tissues. Research suggests that both genetic and epigenetic factors play a role in the presentation and severity of symptoms associated with joint hypermobility. In some individuals, joint hypermobility is an indication of a type of hypermobility syndrome, such as Ehlers-Danlos syndrome – hypermobility type (EDS-HT). Hypermobility syndromes are classified as heritable connective tissue disorders or connective tissue diseases.
There are several types of hypermobility syndromes. Ehlers-Danlos syndrome (EDS) is a hypermobility syndrome. Ehlers-Danlos syndrome – Hypermobility Type, is one of six types of EDS. EDS is a group of heritable connective tissue disorders caused by mutations to either the structure or function of collagen. While researchers are still searching to understand the full complexities of EDS, it is certain that most forms of EDS can cause a broad spectrum of multisystemic dysfunction. Additionally, some EDS researchers speculate that Ehlers-Danlos syndrome – Hypermobility Type may be the most prevalent connective tissue disorder in the world.
‘Experts estimate that up to 10% of the general population may have some degree of hypermobility, with women affected about three times more often than men. Most hypermobile people do not develop any problems from their loose joints, but some suffer chronic pain and other symptoms. Those who do experience chronic joint pain and other symptoms related to their hypermobility or to the looseness of other tissues that often accompanies hypermobility have a condition called joint hypermobility syndrome (JHS).’ (Pocinki A – http://www.dynakids.org/Documents/hypermobility.pdf)
There is currently no cure for hypermobility syndromes. Early detection and proper treatment can help patients lead healthy, active, and fulfilling lives. Obtaining a diagnosis can be difficult. Hypermobility syndromes are often multisystemic and can cause a wide variety of complications throughout all body systems. Patients bounce from doctor to doctor, searching for relief from their many symptoms. Common co-morbidities of hypermobility syndromes include Chronic Fatigue Syndrome, Gastroparesis, Dysautonomia, and Mast Cell Activation Syndrome. EDS Wellness strives to educate doctors on the proper diagnosis and treatment of hypermobility disorders and their co-morbidities.
Board of Directors
I am currently seeking 6 people to serve on the Board of Directors for EDS Wellness. If you would consider my invitation, please review Board commitments below.
- Serve as an individual, not as a representative of their company.
- Provide leadership, wisdom, and creativity for the formulation of policy, progress, and practices that contribute to the mission and initiatives of EDS Wellness and its affiliates.
- Term – Serve a one-year term with the option for consecutive terms based on By-Laws established after 1st Board Retreat/Meeting.
- Calls – Agree to be present on the monthly board call-1 hr max (time/day TBD).
- Meetings –Agree to attend and participate in a minimum of 2 half-day board meetings in a central location per calendar year (virtual attendance is acceptable).
- Meetings – Attend and participate in a 1 ½ day Board Retreat to create our first 5-year strategic business plan and formulate appropriate organizational documents (dates will be mutually agreed upon).
- Take part in fundraising efforts such as grant writing, fundraising events, donation calls, etc.
I am very excited about the opportunities ahead for EDS Wellness and know that your contributions will be invaluable. I would appreciate hearing from you at your earliest convenience. Please feel free to either call my cell phone (240-687-7791), or send an email to [email protected].
Kendra Neilsen Myles
Executive Director & Founder
Source: Neilsen Myles, K., EDS Wellness, Inc. 2017