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Who is EDS Wellness? And what do we do?

EDS Wellness, Inc. Mission Statement:

EDS Wellness, Inc. is a registered 501(c)(3) non-profit organization promoting health education, integrative healthcare, and wellness strategies for living well hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS), other connective tissue diseases, and related comorbidities, through print and digital media resources and materials, seminars, webinars, conferences, health coaching, and patient advocacy,

EDS Wellness provides education on various movement, nutrition, and mind-body therapies by collaborating with healthcare practitioners and like-minded organizations, to improve the quality of life and overall well-being of individuals living with chronic, complex, and multisystemic illnesses.

EDS Wellness collaborates with other organizations and healthcare practitioners on various projects associated with Ehlers-Danlos syndrome (EDS) and its related conditions, to provide information and resources for those living with EDS and the medical professionals who care for them. EDS Wellness focuses on helping patients live well while living with EDS and its comorbid health conditions.

We are also actively working on finalizing our board or directors and our medical advisory board. We will update the website when we have updates concerning the finalization of our board members, and other related information. Please email [email protected] with any questions.

For general questions regarding Ehlers-Danlos syndrome (EDS), you may email one of our Helpline volunteers at [email protected], or use the contact submission form found on the HelpLine page.

EDS Wellness, Inc. does not have physicians in our employ, and we operate under the direction of our director, counsel from our board, and through the assistance of volunteers. The EDS Wellness Helpline is run by our director and volunteers, not by EDS health care providers or specialists. Contacting our Helpline implies an understanding that any information provided is not a substitute for medical advice or care by a professional. You are responsible for your health, wellness, and healthcare.

Please do not call our office number for HelpLine-related questions, as we will direct you back to the HelpLine email to have someone help answer your question and try to provide you the information that you are requesting.

For all other questions, please email [email protected].