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Below is information that I received from the Child Psychologist/Occupational Therapist that my kids see, concerning a current research study on joint hypermobility in children. I was given this flyer and research study information while at my oldest son’s appointment the other day, and I wanted to make sure that I shared it here as well.

EDS Wellness is not involved in this study, nor do I know all of the details. I’m only sharing the opportunity for those who may be interested.

Study information:

  • Study is exploring joint hypermobility and behavioral profiles of children
  • Children age 3-8 years old
  • Must reside in the United States
  • Contact: Crystal Merrill
  • Email: [email protected]

What is Ehlers-Danlos syndrome? 

Below are links and images discussing the signs and symptoms of joint hypermobility and Ehlers-Danlos syndrome (EDS). EDS is a connective tissue disorder that causes joint hypermobility; however, there are several conditions that cause joint hypermobility — Ehlers-Danlos syndrome – Hypermobility Type (EDS-HT/HEDS) is believed to be the most common cause of joint hypermobility. Similarly, EDS is considered to be the most common connective tissue disorder in the world.

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Hypermobility-GP-Leaflet-V2

Graphic shared from Ehlers-Danlos Support UK & Hypermobility Syndromes Association UK (HMSA)

 

Beighton and Brighton = EDS Dx

 

IMG_1939

Graphic shared from The Ehlers-Danlos Society (previously EDNF.org)

Links:

What is Ehlers-Danlos Syndrome?

EMERGENCY Information and Vascular Ehlers-Danlos syndrome (VEDS)

Signs & Symptoms of EDS 

Beighton Score Assesment for Joint Hypermobility 

Brighton Diagnostic Criteria

 

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Graphic & Quote borrowed and shared from Ehlers-Danlos Support UK