What are Ehlers-Danlos syndromes (EDS)?
Once you have received an EDS diagnosis or even if you think you may have EDS, many people will ask, “What are Ehlers-Danlos syndromes?” Having knowledge about what EDS is and how it may “look” both on the outside and on the inside of the body, is one the best things that someone new to EDS can do for themselves. Taking the time to gain a strong understanding of EDS, has helped numerous people find the appropriate treatments and therapies, as well as learn ways to handle the different aches, pains and issues that may arise. Ehlers-Danlos syndrome (EDS) is a group of heritable connective tissue disorders caused by various genetic defects to the structure and function of the collagen protein used to make our connective tissues. These disorders can cause a wide variety of complications throughout all body systems…Learn More
The content shared throughout the EDS Wellness site is currently being edited and updated to reflect the revised diagnostic criteria for all Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) published on March 15th, 2017. We’ve also been working to add more tangible resources to the EDS Wellness website, such as ‘The Global Alliance for Hypermobility Spectrum Disorders Providers (GAHSDP),’ and an e-learning platform that wil allow us to continue broadening the scope of available information and resources for both patients and healthcare providers. If you have questions concerning the content contained on our site or other related questions, please email [email protected].
EDS Wellness HelpLine
For general questions regarding Ehlers-Danlos syndrome (EDS), you may email one of our Helpline volunteers at [email protected], or use the contact submission form below. We aim to respond within 24-48hours. To learn more about EDS Wellness’ Helpline, please go to About the EDS Wellness HelpLine.
The EDS Wellness HelpLine phone line is available on certain days each week, based on the availability of our volunteers. The HelpLine also offers limited one on one private calls, scheduled in 15-minute time slots. Please make sure to check when the HelpLine phone line is open, as the schedule changes each week. To schedule a HelpLine appointment, please click below to schedule a phone appointment.
WEBINAR, PODCAST AND SEMINARS
EDS Wellness collaborates with other organizations and healthcare practitioners on webinars, podcasts, and seminars associated with Ehlers-Danlos syndrome (EDS), other hypermobility syndromes, and other chronic medical...Read More...