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The content shared throughout the EDS Wellness site is currently being edited and updated to reflect the revised diagnostic criteria for all Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) published on March 15th, 2017. We’ve also been working to add more tangible resources to the EDS Wellness website, such as ‘The Global Alliance for Hypermobility Spectrum Disorders Providers (GAHSDP),’ and an e-learning platform that wil allow us to continue broadening the scope of available information and resources for both patients and healthcare providers. If you have questions concerning the content contained on our site or other related questions, please email [email protected].

What are Ehlers-Danlos syndromes (EDS)?

Once you have received an EDS diagnosis or even if you think you may have EDS, many people will ask, “What are Ehlers-Danlos syndromes?”  Having knowledge about what EDS is and how it may “look” both on the outside and on the inside of the body, is one the best things that someone new to EDS can do for themselves.  Taking the time to gain a strong understanding of EDS, has helped numerous people find the appropriate treatments and therapies, as well as learn ways to handle the different aches, pains and issues that may arise.  Ehlers-Danlos syndrome (EDS) is a group of heritable connective tissue disorders caused by various genetic defects to the structure and function of the collagen protein used to make our connective tissues. These disorders can cause a wide variety of complications throughout all body systems…Learn More

The Role of Gut Health and Nutrition in Healing with Chronic Illness. Speaker – Jyothi Rao, M.D. Join Us Today at 2pm EST!

EDS Wellness is thrilled to have Dr. Jyothi Rao join the speaker line up for our 2018 Video Webinar Series & Educational Program. Dr. Rao also spoke at Wellapalooza 2017 and our 2017 Physicans Learning Conference. It's an honor to have her speak again! Join us TODAY...

Mind-Body Strategies Program Abstract Submitted and Accepted for Poster Presentation at the 2018 International Congress on Integrative Medicine and Health Academic Consortium!

'Approaches to Integrative Health & Mind-Body Strategies for Persons with Hypermobility-related Disorders, such as Ehlers-Danlos syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and comorbid conditions: A Movement and Mindfulness-Based Health Education...

Congratulations to Dr. Linda Bluestein on the Grand Opening of ‘Wisconsin Integrative Pain Specialists’!

EDS Wellness is thrilled to congratulate Dr. Linda Bluestein on the opening of her practice, 'Wisconsin Integrative Pain Specialists', who celebrated their grand-opening yesterday, December 11th, 2017. Dr. Bluestein is on EDS Wellness' Medical Advisory Board, a member...

Applying for Disability Benefits with Ehlers Danlos syndromes and Other Hypermobility Related Disorders

***Guest post written by Disability Help and shared with permission. Medical content & information on Ehlers-Danlos syndromes by EDS Wellness.*** Ehlers-Danlos syndromes are a group of heritable connective tissue disorders that are caused by various genetic defects,...

#GivingTuesday – There’s Still Time Left! Your Donations to EDS Wellness Can Go Twice As Far!

#GivingTuesday is today! There's Still Time to Submit Monetary or In-Kind Donations to EDS Wellness! All Donations are 100% Tax-Deductible! Donations Submitted Through Facebook's Donation Button or EDS Wellness' #GivingTuesday Facebook Campaign are matched because of...

EDS Wellness HelpLine

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For general questions regarding Ehlers-Danlos syndrome (EDS), you may email one of our Helpline volunteers at [email protected], or use the contact submission form below. We aim to respond within 24-48hours. To learn more about EDS Wellness’ Helpline, please go to About the EDS Wellness HelpLine.

The EDS Wellness HelpLine phone line is available on certain days each week, based on the availability of our volunteers. The HelpLine also offers limited one on one private calls, scheduled in 15-minute time slots. Please make sure to check when the HelpLine phone line is open, as the schedule changes each week. To schedule a HelpLine appointment, please click below to schedule a phone appointment.

RESOURCES AND MATERIALS

EDS Wellness collaborates with other organizations and healthcare practitioners on various print and digital media projects associated with Ehlers-Danlos syndrome (EDS) and related conditions, to provide information and resources Read More...

PROFESSIONAL SPEAKING AND TRAINING

Professional speaking, training, and education on Ehlers-Danlos syndrome (EDS), other hypermobility syndromes, connective tissues disorders, and related chronic medical conditions. Additionally, EDS Wellness collaborates with Read More...

PATIENT AND HEALTH EDUCATION

Health education and program development services are primarily focused on Ehlers-Danlos syndrome (EDS), other hypermobility syndromes, connective tissues disorders, and related chronic medical conditions. Additionally...Read More...

DIGITAL AND PRINT MEDIA

EDS Wellness collaborates with other organizations and healthcare practitioners on various print and digital media projects associated with Ehlers-Danlos syndrome (EDS) and related conditions, to provide information and...Read More...

EDUCATIONAL VIDEOS AND VIDEO SERIES

EDS Wellness collaborates with other organizations and healthcare practitioners on various educational video and video series projects associated with Ehlers-Danlos syndrome (EDS) and related conditions, to provide...Read More...

CONFERENCES AND RETREATS

EDS Wellness collaborates with other organizations and healthcare practitioners on integrative health and wellness conferences and retreats associated with Ehlers-Danlos syndrome (EDS), other hypermobility syndromes...Read More...

WEBINAR, PODCAST AND SEMINARS

EDS Wellness collaborates with other organizations and healthcare practitioners on webinars, podcasts, and seminars associated with Ehlers-Danlos syndrome (EDS), other hypermobility syndromes, and other chronic medical...Read More...

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