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The Healthcare and HealthIT Information Standard

EDS Wellness’ Committment to the HealthIT Initiative and Affiliations for the Healthcare Information Standard

The six principles of the Health IT Initiative are: (1) openness; (2) transparency; (3) impartiality and consensus; (4) relevance and effectiveness; (5) coherence; and (6) the development dimension.

Links and Resources:

Health IT initiative – http://gsi.nist.gov/global/index.cfm/L1-8/L2-54

National Institutes of Standards and Technology – http://gsi.nist.gov/global/index.cfm/L1-5/L2-44/A-165

The S&I Framework

The Standards and Interoperability (S&I) Framework empowers healthcare stakeholders to establish standards, specifications and other implementation guidance that facilitate effective healthcare information exchange. The S&I Framework creates a forum – enabled by integrated functions, processes, and tools – where healthcare stakeholders can focus on solving real-world interoperability challenges.

Learn more about the S&I Framewor – http://www.siframework.org

What is the S&I Framework?

The S&I Framework is a collaborative community of participants from the public and private sectors who are focused on providing the tools, services and guidance to facilitate the functional exchange of health information.  The S&I Framework uses a set of integrated functions, processes, and tools that enable execution of specific value-creating initiatives.  Each S&I Initiative tackles a critical interoperability challenge through a rigorous process that typically includes:

* Development of clinically-oriented user stories and robust use cases
* Harmonization of interoperability specifications and implementation guidance
* Provision of real-world experience and implementer support through new initiatives, workgroups and pilot projects
* Mechanisms for feedback and testing of implementations, often in conjunction with ONC partners such as NIST

S&I Initiatives:

Each S&I Initiative focuses on a single, narrowly-scoped, broadly-applicable challenge. The S&I Framework community has demonstrated its support and interest in the evolution and refinement of key challenges currently being tackled. Learn more about Current S&I Initiatives.

Implementation tools – https://sitenv.org

Commitment statement for S&I Framework:

EDS Wellness, Inc. commits to participation by supporting the development of acceptable standards in the area of public health education, dissemination and adoption of relevant information, and integrative healthcare strategies for the proper diagnosis and care of patients with hypermobility syndromes, such as Ehlers-Danlos syndromes, other heritable connective tissue disorders, and related comorbid conditions such as Mast Cell Activation Disorder, Dysautonomia, and other chronic multi-systemic medical conditions. Additionally, EDS Wellness commits to participating for the specific support and strength in positioning of all healthcare providers to increase quality and safety for the patients they serve.

Committed Deliverables:

EDS Wellness, Inc. commits to participating in calls, webinars, review/contribution of content, feedback, and will facilitate board member, affiliate, employee, contractor, and volunteer communication and education. Additionally, EDS Wellness, Inc. committees to producing relevant educational conference, podcasts, webinars, seminars, courses, and educational videos on hypermobility syndromes, such as Ehlers-Danlos syndrome (EDS), other heritable connective tissue disorders, diseases of the connective tissue, and their comorbid conditions — specifically in the areas of integrative healthcare, patient education, and professional education opportunities for healthcare providers. EDS Wellness focuses on patient health education and integrative health and wellness coaching that empowers the individual to take an active role in their own health and overall well-being through movement, nutrition and evidence-based mind-body approaches for the management of complex, chronic, and multi-systemic medical conditions.

Joined Initiative(s):

* Public Health Tiger Team
* Public Health Reporting (Community-Driven)
* Blue Button Plus Initiative (BB+)
* PDMP & Health IT Integration
* electronic Submission of Medical Documentation (esMD)

Joined:

*Longitudinal Coordination of Care – Longitudinal Care Plan
*Longitudinal Coordination of Care – Long-Term and Post-Accute Care

HealthIT.giv

*Consumer Toolkit – https://www.healthit.gov/patients-families/consumer-toolkit

Blue Button Connector – get started: 

*http://bluebuttonconnector.healthit.gov

*http://bluebuttonconnector.healthit.gov/update-organization/

The Information Standard for healthcare information (UK):

*Learn more by going to http://www.nhs.uk/pages/home.aspx

Healthfinder.gov: 

http://healthfinder.gov/aboutus/QualityGuidelines.aspx

Health widgets to add to site – http://healthfinder.gov/StayConnected/HealthWidgets.aspx

Other resources:

*http://www.ahrq.gov/research/data/ushik/index.html

*NISO – http://www.niso.org/home/

*http://www.hon.ch/HONcode/Conduct.htmlhttp://www.hon.ch/HONcode/Patients

Wikispaces & Classrooms:

Wikispaces Classroom – https://www.wikispaces.com/content/classroom/about

Company website – https://www.wikispaces.co

Professional Organization Memberships and Affiliations:

Healthcare Information and Management Systems Society (HIMSS):

Non-Profit Member – http://marketplace.himss.org/CompanyDirectory/NonProfit/

The Healthcare Information Technology Standards Panel (HITSP):

Membership: http://www.hitsp.org/membership.asp

Website: www.HITSP.org

Society for Participatory Medicine:

Public profile – http://members.participatorymedicine.org/Sys/PublicProfile/33962430

Society to Improve Diagnosis in Medicine:

Personal Profile – www.improvediagnosis.org/member/KendraNMyles