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List of EDS and Related Organizations, Resources, and Links

Suicide Hotline
1-800-273-8255

EDS and Hypermobility Organizations:

EDS Wellness
http://edswellness.wpengine.com

The Hypermobility Syndromes Association
http://hypermobility.org

The Ehlers-Danlos Society
http://ehlers-danlos.com

EDS 2016 International Symposium
http://eds2016.org/

EDS Awareness
http://chronicpainpartners.com

Ehlers-Danlos Syndrome Network Cares
http://www.ehlersdanlosnetwork.org/

EDS Today
http://edstoday.org/

Center for Ehlers-Danlos Syndrome Alliance
https://www.cedsa.org/

Life as a Zebra Foundation
http://www.zebranation.org/

EDSers United Foundation
https://www.edsers.com/

Atlantic Ehlers-Danlos Syndrome Society (Nova Scotia)
http://www.atlanticedssociety.ca/

Ehlers-Danlos Syndrome Canada
http://www.ehlers-danlossyndromecanada.org/home.htm

Ehlers-Danlos Support Group (UK)
http://www.ehlers-danlos.org/

Ehlers-Danlos Syndrome (Netherlands)
http://www.ehlers-danlos.nl/site/index.cfm

Ehlers-Danlos Syndrome (Swiss)
http://www.swiss-eds.ch/

Ehlers-Danlos Syndrome (Sweden)
http://ehlers-danlos.se/

Ehlers-Danlos Syndrome (Denmark)
http://ehlersdanlos.dk/

Ehlers-Danlos Syndrome (France)
http://www.afsed.com/

Ehlers-Danlos Syndrome (Norway)
http://www.eds-foreningen.no/

Irish EDS & HMS
http://irishedsandhms.ie/

India EDS & HMS – http://jhs-heds-india.blogspot.com

Information for Healthcare Professionals
 – http://strengthflexibilityhealtheds.com/eds-information-and-resources-for-healthcare-professionals/

Information resources for Patients – 
http://strengthflexibilityhealtheds.com/eds-information-resources-and-news-for-patients/

Blood volume testing – 
http://my.clevelandclinic.org/heart/services/tests/nuclear/bloodvolumetesting.aspx

Good North American Doctors – 
https://www.facebook.com/groups/1438285386415297/

Good European Doctors
 – https://www.facebook.com/groups/372374862916395/

Good Australian Doctors
 – https://www.facebook.com/groups/287952358017187/

Links to information and organizations that focus on conditions related to hypermobility and EDS, or focus on other connective tissue disorders:

Dysautonomia International
 – http://www.dysautonomiainternational.org

The John Ritter Foundation – http://johnritterfoundation.org

Pain Down There – http://www.paindownthere.com

International Pain Foundation – https://powerofpain.org

For Grace – http://www.forgrace.org

Aortic Dissection – 
http://www.thedoctorstv.com/videolib/init/1548

Marfan Syndrome
 – http://www.marfan.org/

Osteogenesis imperfecta – 
http://www.oif.org

Epidermolysis bullosa – 
http://www.debra.org/whatiseb

Stickler Syndrome – 
http://sticklers.org

Alport Syndrome – 
http://www.alportsyndrome.org/

Loeys–Dietz Syndrome
 – http://loeysdietz.org/

Williams Syndrome – 
https://williams-syndrome.org/

Cutis Laxita – http://www.merckmanuals.com/home/children-s-health-issues/hereditary-connective-tissue-disorders/cutis-laxa

Ectopia Lentis – 
http://www.marfan.org/ectopia-lentis-syndrome

Familial Thoracic Aneurysm and/or Dissection – 
http://www.marfan.org/familial-aortic-aneurysm

Fragile-X Syndrome – http://www.fragilex.org/

MASS Phenotype
 – http://www.marfan.org/mass-phenotype

Mitral Valve Prolapse Syndrome – http://mitralvalveprolapse.com/