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Patient Referral and Support Networks and Memberships

EDS Wellness’ Patient Referral and Support Networks and Memberships seek to build a community of patients, caregivers, educators and health seekers whose shared vision, mission, and goals result in ground-breaking collaboratives which focus on improving patient outcomes through education and support programs, proper diagnosis and care, and by creating wellness and self-empowerment practices for patients with hypermobility syndromes and comorbid conditions.

Education • Diagnosis • Solutions

A list of our patient referral networks and membership options are listed below. If you are interested in volunteer opportunities, please fill out our Volunteer Application.

  • Patient Referral and Support List – available for patients, parents, caregivers, educators and other individuals who would like to take advantage of this support resource. This email support and referral list is a “list serve” vs. our EDS Wellness email list and is available as a networking and resource tool for patients and other individuals who wish to learn more about living with hypermobility syndromes, such as Ehlers-Danlos syndrome and its comorbid conditions. It also serves as a resource and referral list for those who currently diagnosed and who are seeking a private and informative resource for tips and strategies for living with EDS and its comorbid conditions. This patient referral and support list will also have an online and private community option in the future.
  • Healthcare Provider Referral List for Patients – will be provided privately to patients, when asked. Not publicly displayed.
  • Patient Email/Mailing List – email/mailing list for patient-related information and announcements from EDS Wellness. This email/mailing list is different from the Patient Referral and Support List and is the general EDS Wellness email list.
  • Yearly EDS Wellness Memberships – will be available soon. Patient memberships are available for patients, parents, caregivers, educators and other individuals who would like to take advantage of yearly membership benefits. Details will be provided when membership options are available.
  • Monthly Integrative Wellness Coaching Membership – to learn more about this tax-exempt service, please visit Integrative Health and Wellness Coaching. To sign-up for a monthly Integrative Wellness Coaching Membership, please visit

If you would like to be added to one of our patient referral lists, please fill out the contact form below.