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Patient Referral and Support Networks

EDS Wellness’ Patient Referral and Support Networks and Memberships seek to build a community of patients, caregivers, educators and health seekers whose shared vision, mission, and goals result in ground-breaking collaboratives which focus on improving patient outcomes through education and support programs, proper diagnosis and care, and by creating wellness and self-empowerment practices for patients with hypermobility syndromes and comorbid conditions.

Education • Diagnosis • Solutions

A list of our patient referral networks and membership options are listed below. If you are interested in volunteer opportunities, please fill out our Volunteer Application.

  • Patient Referral and Support List – available for patients, parents, caregivers, educators and other individuals who would like to take advantage of this support resource. This email support and referral list is a “list serve” vs. our EDS Wellness email list and is available as a networking and resource tool for patients and other individuals who wish to learn more about living with hypermobility syndromes, such as Ehlers-Danlos syndrome and its comorbid conditions. It also serves as a resource and referral list for those who currently diagnosed and who are seeking a private and informative resource for tips and strategies for living with EDS and its comorbid conditions. This patient referral and support list will also have an online and private community option in the future.
  • Healthcare Provider Referral List for Patients – will be provided privately to patients, when asked. Not publicly displayed.
  • Patient Email/Mailing List – email/mailing list for patient-related information and announcements from EDS Wellness. This email/mailing list is different from the Patient Referral and Support List and is the general EDS Wellness email list.
  • Yearly EDS Wellness Memberships – will be available soon. Patient memberships are available for patients, parents, caregivers, educators and other individuals who would like to take advantage of yearly membership benefits. Details will be provided when membership options are available.
  • Individual Services – Advocacy for Inviduals & Families, Personal Wellness Education & Strategic Lifestyle Modification Programs and Services, as well as Movement Instruction – limited availability and determined by need. Fees based on sliding scale and are tax-exempt. 

Individual Memberships:

Option 1: Member for Life     No Charge – $0/year

  • MUST register for Member for Life membership to receive login information and membership materials
  • Membership does NOT renew automatically
  • Yearly membership renewel is required to maintain active status and access to membership benefits
  • Access to Indv. Level 1 courses and videos
  • Read Full Membership Benefits

Option 2: Team EDS Wellness – Living Well​     $50/first year only ($75/year after 1st year)

  • Must register by February 28th, 2018 to receive launch promo.
  • Membership renews yearly
  • Access to Indv. Level 1, 2 and 3 courses, and all movement & wellness-focused classes and event recordings (DOES include access to view Wellapalooza 2017 retreat recordings, but NOT professional education videos or presentation recordings from the 2017 Physicians Learning Conference.)
  • Read Full Membership Benefits

Option 3: Yearly Conference Attendee – Individual    No Charge – $0/year conference attended

  • For yearly conference/retreat attendees only – 1 year membership included with conference registration
  • No registration required – Login information provided via email used for conference registration
  • Membership does NOT renew. No renewal options available for the Yearly Conference Attendee membership (Individual or Professional)
  • Access to Indv. Level 3 course – Conference Recordings and Materials Year Attended ONLY (Does NOT included access recordings and materials from professional education or physicians learning conferences held same year.)
  • After first year, regular membership options and requirements apply for access to all conference presentations and materials (NOT including professional education or physicians learning conference videos), specific content and other organizational courses and videos
  • Read Full Membership Benefits

If you would like to be added to one of our patient referral lists, please fill out the contact form below.