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Education • Diagnosis • Solutions

EDS Wellness is a 501(c)(3) non-profit organization promoting health education, integrative healthcare, and wellness strategies for living well with Hypermobility Spectrum Disorders (HSD), such as Ehlers-Danlos syndromes (EDS), other disorders of the connective tissue, and related conditions such as Mast Cell Activation Syndromes (MCAS), Dysautonomia and more.

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SERVICES

Wellness Education, Strategic Lifestyle Support, Medical and Health Success Planning Programs and Services for Individuals and Small Groups

Wellness Education and Strategic Lifestyle Support

Services and Programs for Individuals and Small Groups:

Working with certified health education specialist is similar to working with a counselor, but with a powerful action element. Holding your agenda in the forefront, your specialist will listen to what you are saying, and be mindful of what you are not saying. You will be challenged when appropriate, while also having the unconditional support of your biggest cheerleader. Working with a Certified Health Educational Specialist (CHES) will enable you to sharpen your skills when it comes to fitness, nutrition, and identify barriers to your health that may exist in other aspects of your life. You will learn to balance your wellness needs to fit your lifestyle, your schedule and find what works best in collaboration with your family and those around you. Every individual is different — there’s not a one size fits approach to how we all should live our lives, gain strength, improve our health and overall well-being. Therefore, your health education specialist will customize a plan that will work best for you based on your unique biochemical and psychological needs while also identifying the unique barriers you face to achieving your health goals. Your health education specialist will help foster necessary behavior modifications and lifestyle change, that will shape your health and over well-being, help you achieve your goals, and live a healthy and more fulfilling life — one that you deserve. You will be inspired and empowered through the support of your health education specialist while being held accountable through which perseverance you will be lead to succeed! 

Individual wellness and lifestyle education, movement and yoga instruction and professional advocacy, are limited and provided if schedules permit. Fees often apply when requesting or making one-on-one appointments, not including those made through EDS Wellness’ HelpLine. Charges for personalized services and instruction are tax-exempt and based on a sliding scale in accordance with EDS Wellness’ 501(c)(3) status. If you would like to inquire about or request an individual wellness or movement appointment or service, please send an email to [email protected]. 15 min phone consults are available to determine needs and discuss scheduling options – Make Appointment. Click here to make a 15 min patient advocacy consult appointment. 

Movement and Yoga Instruction

Individual and small group movement and yoga instruction focuses on natural movement patterns and corrective exercise principles, including aspects of pilates, yoga and restorative exercise. Each session will help develop your understanding of how to move naturally with hypermobility, find ways to move through life with more ease and less pain, and empower you to take control of your overall health and well-being.

Small group wellness and movement education, instruction and programs are provided regularly through various types of virtual and in-person events. EDS Wellness holds classes, live broadcasts, conferences and retreats, as well as weekend intensives and workshops throughout the year. Please refer to our events page to view our weekly and monthly schedule. Additionally, presentation and class recordings are available through various courses on EDS Wellness’ new eLearning platform and “virtual” classroom. EDS Wellness Memberships are required to access certain resoruces and materials. 

Group movement and yoga instruction, in addition to health education program and wellness service requests are avaiable a more consistent basis. Fees may apply. Send information or scheduling requests to [email protected]. 15 min phone consult appointments are also available – Make Appointment. If available and date of service or appointment is confirmed, payment is expected at the time of booking. Refunds are only provided if cancellation is received within 24 hrs prior to appointment day and time. No exceptions.

 

Professional Patient Advocacy

A patient advocate is a professional that has developed an expertise in navigating the complex healthcare system through experience and education. A patient advocate provides direct support services to patients and their caretakers by ensuring that the patient’s voice is represented in their medical care while providing the information a patient needs to implement informed decision making. There are patient advocates established at hospitals who provide their services to patients free of charge; however, these individuals usually work for a hospital’s risk management department. Patient advocates that are employed by hospitals or a  healthcare system  provide mediation between patient’s complaints and the hospital, to help minimize a hospital’s liability. These patient advocates are not trained in your specific condition, nor do they represent you outside of the hospital. Additionally, there are organizations that offer free advocacy resources but may only serve specific issues. Many free patient advocate services are not local or specific to your needs/condition. Free services outside these situations are often only provided to patients who meet the federal poverty guidelines.

How would a patient advocate help me?

A patient advocate is committed to helping you by providing the information and resource connections that are needed to meet your healthcare needs most effectively. Also, patient advocates are empathetic to your situation, and understand the overwhelming emotions that come with navigating the complex health care system; thus, having a patient advocate can also help alleviate any un-needed stress. Working with a private patient advocate means that you have someone to navigate your healthcare needs that have only your best interest in mind. Patient Advocates usually only take cases that they are comfortable supporting.

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Health and Medical Success Planning

For Individuals and Families:

When working with a Certified Health Education Specialist, he/she serves as a supportive mentor — one whose focus is on facilitating the lifestyle changes and behavior modifications required to restore function and living well – even for families. After developing a personalized approach to wellness, including proactive and self-directed steps to begin your health journey, he/she will walk beside you, provide motivation, consistent encouragement and a dose of reality, when needed. And, when struggling with sudden forks in the road, or if feeling overwhelmed with how to balance daily life, work, living with a chronic medical condition(s), and how to remain focused and committed to following your health plan, your specialist will provide unconditional support and gentle guidance to help you remain focused as much as possible on continuing to move forwards, reaching the next step in your health journey, and realizing your wellness vision – no matter how long, bumpy or impossible the path may seem to be.

Additionally, certified health education specialists have the knowledge and skill set to serve as am strategic liaison and an important member of your healthcare team. Certified Health Education Specialists have completed and met extensive educational and certification requirements needed to equip you with the tools, education, and support required to reach your health goals and wellness vision. Individual programs focus on all components of your health and life — financial, emotional, social, mental, physical, and nutritional. 

EDS Wellness focuses on the seven pillars of wellness when working with clients and on related projects. The seven pillars of wellness include:

  • Spiritual
  • Intellectual
  • Emotional
  • Social
  • Physical
  • Environmental
  • Occupational

Working with a Certified Health Education Specialist (CHES):

Certified Health Education Specialists (CHES) are health and wellness experts, who have met all academic and graduation eligibility requirements to sit for either the CHES or MCHES nationally recognized professional credentialing exams. Academic eligibility requirements include graduation with a bachelor’s, master’s or doctoral degree/major explicitly in a discipline of “Health Education” from an accredited institution of higher education. Additionally, Certified Health Education Specialists have extensive education and training in the development and implementation of public health campaigns, health education programs, work site wellness services, other public health focused projects, conducting pre and post-program implementation evaluations and project related research.

Certified Health Education Specialists (CHES) are also equipped with the education and appropriate skill set to serve as a strategic liaison and an important member of a patient’s healthcare team, or help provide a more personalized patient engagement and wellness fostering solution in collaboration with healthcare providers. Similarly, they often work one-on-one with clients equipping them with the tools, education, and support for making the long-standing lifestyle modifications and behavior changes required to reach their health and wellness goals.

Learn more: About CHES, CHES Scope of Practice, Certification Eligibility, Brochure for Providers

Being "healthy" and living well is not solely about nutrition and fitness - total wellness encompasses all aspects of an individual's life.

DIGITAL AND PRINT MEDIA

EDS Wellness collaborates with other organizations and healthcare practitioners on various print and digital media projects associated with Hypermobility Disorders, Ehlers-Danlos syndrome (EDS) and related conditions, to provide information and resources Read More…

GUEST SPEAKING, TRAINING AND PROFESSIONAL EDUCATION

Guest speaking, as well as professional training and education on Hypermobility Disorders, Ehlers-Danlos syndromes (EDS), other connective tissues disorders, and related chronic medical conditions. Additionally, EDS Wellness collaborates with Read More…

HEALTH EDUCATION AND PROGRAM DEVELOPMENT

Health education and program development services often focus on hypermobility related disorders, such as Ehlers-Danlos syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and related conditions. Additionally…Read More…

PATIENT EDUCATION RESOURCES AND MATERIALS

EDS Wellness collaborates with other organizations and healthcare practitioners on various print and digital media projects associated with Ehlers-Danlos syndrome (EDS) and related conditions, to provide information and…Read More…

"VIRTUAL" CLASSROOM - ELEARNING COURSES, EDUCATIONAL VIDEO SERIES, PODCASTS, WEBINARS AND LIVE BROADCASTS

EDS Wellness collaborates with other organizations and healthcare practitioners on various educational video and video series projects associated with Ehlers-Danlos syndrome (EDS) and related conditions, to provide…Read More…

CONFERENCES AND RETREATS

EDS Wellness collaborates with other organizations and healthcare practitioners on integrative health and wellness conferences and retreats associated with Ehlers-Danlos syndrome (EDS), other hypermobility syndromes…Read More…

PROFESSIONAL EDUCATION FOR HEALTHCARE PROVIDERS

EDS Wellness, Inc. collaborates with other organizations and healthcare practitioners, facilitating continuing education and discussions on integrative healthcare and managing patients with complex chronic medical conditions…Read More…

WEEKEND INTENSIVES, SEMINARS AND WORKSHOPS

EDS Wellness collaborates with other organizations and healthcare practitioners on webinars, podcasts, and seminars associated with Ehlers-Danlos syndrome (EDS), other hypermobility syndromes, and other chronic medical…Read More…

Do you have a question about personal health education and wellness services? Send us a message below!

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“I have to thank Kendra Neilsen Myles for being a phenomenal educator, advocate for EDS, POTS, and Dysautonomia awareness. Without your exceptional knowledge, advocacy, and selfless care for others suffering from invisible illnesses, I would never have ever taken the steps needed to get properly diagnosed. You are a hero, Kendra! I can never thank you enough for helping to save my life. Thank you, from the bottom of my heart.”

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