Who We Are
EDS Wellness is on a mission to provide virtual and in-person patient and continuing medical EDUCATION, to facilitate proper DIAGNOSIS for ALL hypermobility disorders and related conditions, and to develop and implement research-based SOLUTIONS for patients and healthcare providers.
Learn By Doing
Our NEW eLearning platform has launched! EDS Wellness is thrilled to finally share the 1st (& only) e-Learning platform devoted to providing EDUCATION & Integrative SOLUTIONS for restoring function and living well. We hope to see you – virtually – in our online classroom/studio during live broadcasts and through courses on our new eLearning platform.
What We Do
EDS Wellness is a 501(c)(3) non-profit organization promoting health education, integrative healthcare, and wellness strategies for restoring function & living well with all hypermobility disorders, including Ehlers-Danlos syndromes (EDS) & hypermobility spectrum disorders (HSD), and related condtions. EDS Wellness develops and implements virtual & in-person educational programs, resources & related materials on various movement, nutrition, and mind-body strategies for patients, providers, caregivers and educators.
From Our Executive Director & Founder
“I couldn’t be more thrilled to have the EDS Wellness site back up. While it’s still a work in progress and there’s still a lot left to be done, we will be forever grateful for the $1000 grant we received earlier this month as part of a charitable fund donation from an amazing donor.
How incredibly exciting to receive a gift so significant – and at just the time we needed it most! Thank you doesn’t seem to express our incredible gratitude for receiving such a substantial contribution & grant for EDS Wellness’ “area of most need.”
Because of donations received from our charitable partners through eBay & PayPal Giving & the unexpected grant for $1000, EDS Wellness was able to pay our insurance, other monthly operating expenses, and invest in a few hours of professional website analysis & help! EDS Wellness’ site is back up – live on a new server, even while we work through updating content, correcting links and adding additional resources through the backend. Additionally, we were honored to have collaborative working relationships & the trust of two of our sister nonprofit organizations. Together with EDS Awareness, we worked for a year developing the 1st EDS Leadership Conference & Support Program — LEAD EDS. Our inaugural event was held in Mason, Ohio on May 17th, 2019 and included special guest performer, Mandy Harvey. At the beginning of May, EDS Wellness was asked to present & provide support at the Neuro Connect Summit in Rockville, MD and held by Dysautonomia Support Network (DSN). Read Full Letter
– Kendra Neilsen Myles, CHES, BCPA, RYT 200
Learn With Us!
Ask the MCAS Expert – LIVE! Part 3 with Focus on Mental Health
Video Webinar – Virtual
Webinar & Discussion
CSF Leaks – Common Cause of Headaches & Misdiagnosis in EDS
Webinar & Discussion
‘Ask the MCAS Expert – LIVE! Part 4’ with Dr. Tania Dempsey
Dineo Moja - EDS Wellness' Summer of 2018 Intern
Board of Directors
Medical, Professional & Patient Advisory Boards
Nonprofit partners, donors and sponsors
Expanding Our Team to Include Wellness Ambassadors, Patient Experts, Local Support Groups & a Chapter Network. Please View Applications & Forms.
Updates & Annoucements
Help Change A Life
“Knowledge, expertise, kindness…. when looking for help, frustration can lead to hopelessness. Thankfully, EDS Wellness is a resource that can make a difference. One person at a time.”
EDS Wellness is a premier global nonprofit organization on a mission to help those living hypermobility disorders & related conditions restore function & live well.Newsletter Archives
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Shifting the Standard of Care Paradigm
EDS Wellness is a 501(c)(3) nonprofit located in the state of Maryland, USA. We are a global public health and wellness-minded charitable organization focused on developing health education programs, events and support materials, for patients, providers, caregivers & educators. EDS Wellness’ work is centered around research-based integrative health strategies to help individuals restore function & live well with ALL hypermobility disorders and related conditions. EDS Wellness utilizes social media, live broadcasting & virtual marketing strategies to reach our global patient and medical communities. Learn more about What We Do.