EDS Wellness

Restore FunctionLive Well

Who We Are

EDS Wellness is on a mission to provide virtual and in-person patient and continuing medical EDUCATION, to facilitate proper DIAGNOSIS for ALL hypermobility disorders and related conditions, and to develop and implement research-based SOLUTIONS for patients and healthcare providers.

Learn By Doing

Our NEW eLearning platform has launched!  EDS Wellness is thrilled to finally share the 1st (& only) e-Learning platform devoted to providing EDUCATION & Integrative SOLUTIONS for restoring function and living well. We hope to see you – virtually – in our online classroom/studio during live broadcasts and through courses on our new eLearning platform. 


What We Do

EDS Wellness is a 501(c)(3) non-profit organization promoting health education, integrative healthcare, and wellness strategies for restoring function & living well with all hypermobility disorders, including Ehlers-Danlos syndromes (EDS) & hypermobility spectrum disorders (HSD), and related condtions. EDS Wellness develops and implements virtual & in-person educational programs, resources & related materials on various movement, nutrition, and mind-body strategies for patients, providers, caregivers and educators.

A Message

From Our Executive Director & Founder

“I couldn’t be more thrilled to have the EDS Wellness site back up. While it’s still a work in progress and there’s still a lot left to be done, we will be forever grateful for the $1000 grant we received earlier this month as part of a charitable fund donation from an amazing donor.


How incredibly exciting to receive a gift so significant – and at just the time we needed it most! Thank you doesn’t seem to express our incredible gratitude for receiving such a substantial contribution & grant for EDS Wellness’ “area of most need.”

Because of donations received from our charitable partners through eBay & PayPal Giving & the unexpected grant for $1000, EDS Wellness was able to pay our insurance, other monthly operating expenses, and invest in a few hours of professional website analysis & help! EDS Wellness’ site is back up – live on a new server, even while we work through updating content, correcting links and adding additional resources through the backend. Additionally, we were honored to have collaborative working relationships & the trust of two of our sister nonprofit organizations. Together with EDS Awareness, we worked for a year developing the 1st EDS Leadership Conference & Support Program — LEAD EDS. Our inaugural event was held in Mason, Ohio on May 17th, 2019 and included special guest performer, Mandy Harvey. At the beginning of May, EDS Wellness was asked to present & provide support at the Neuro Connect Summit in Rockville, MD and held by Dysautonomia Support Network (DSN). Read Full Letter


– Kendra Neilsen Myles, CHES, BCPA, RYT 200


Learn With Us!



Ask the MCAS Expert – LIVE! Part 3 with Focus on Mental Health

Video Webinar – Virtual

Event Info

Webinar & Discussion 



CSF Leaks – Common Cause of Headaches & Misdiagnosis in EDS

Video Webinar – Virtual
Event Info

Webinar & Discussion 



‘Ask the MCAS Expert – LIVE! Part 4’ with Dr. Tania Dempsey

Video Webinar – Virtual
Event Info
Dr. Tania Dempsey is joining us for Part 4 of the ‘Ask the MCAS Expert’ series and will expand upon another area of comorbidity. We will broadcast via Zoom & Facebook – answering your questions LIVE on MCAS & related conditions.
Our Team

Volunteer Spotlight

Dineo Moja - EDS Wellness' Summer of 2018 Intern

Board of Directors
Advisory Boards

Medical, Professional & Patient Advisory Boards

Volunteer Leaders

Nonprofit partners, donors and sponsors




Dineo Moja

Team Expansion

Expanding Our Team to Include Wellness Ambassadors, Patient Experts, Local Support Groups & a Chapter Network. Please View Applications & Forms. 



Updates & Annoucements

Ask The MCAS Expert – LIVE! Part 6 with Dr. Tania Dempsey: Special Focus on Pain Disorders & MCAS

EDS Wellness is teaming up with Dr. Tania Dempsey of Armonk Integrative Medicine join us, again, as part the 2019 continuation of our successful 2018 video webinar series & education program. For the 6th time, Dr. Tania Dempsey will host a Facebook LIVE Q&A Broadcast – an extension of the popular “Ask the MCAS Experts” blog series. Dr. Dempsey will be answering your MCAS questions in real-time – both on Zoom & on Facebook. The focus for our 6th LIVE Q&A & video webinar is Pain Disorders & MCAS.


Help Change A Life

“Knowledge, expertise, kindness…. when looking for help, frustration can lead to hopelessness. Thankfully, EDS Wellness is a resource that can make a difference. One person at a time.”

Parent & Donor

EDS Wellness is a premier global nonprofit organization on a mission to help those living hypermobility disorders & related conditions restore function & live well.

Newsletter Archives

Our amazing donors, sponsors & nonprofit partners!

Thank you!

Get In Touch

Patients & Families

Funds Invested & Donated

Resources & Programs

Providers Educated

Say Hello!

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Mailing Address:
5213 Fairgreene Way. Ijamsville, MD 21754

Google Voice: 434-829-2185

Email: info@edswellness.org

Tax ID/EIN: 81-1592109

Shifting the Standard of Care Paradigm

EDS Wellness is a 501(c)(3) nonprofit located in the state of Maryland, USA. We are a global public health and wellness-minded charitable organization focused on developing health education programs, events and support materials, for patients, providers, caregivers & educators. EDS Wellness’ work is centered around research-based integrative health strategies to help individuals restore function & live well with ALL hypermobility disorders and related conditions. EDS Wellness utilizes social media, live broadcasting & virtual marketing strategies to reach our global patient and medical communities. Learn more about What We Do

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