The Anesthesia & Surgery Alerts for Ehlers-Danlos syndromes (EDS) and Related Disorders wallet card was created and shared by Linda Bluestein, M.D. EDS Wellness worked with Dr. Bluestein to provide this important patient resource in several types of downloadable & printable media files (B/W JPEG, B/W 8X11 PDF & B/W scanned wallet card PDF). The medical content, along with each version of Dr. Bluestein’s anesthesia and surgery alerts wallet card, is available below.
For other uses or permissions related to Dr. Bluestein’s Anesthesia & Surgical Alerts wallet card or its medical content, please reach out to Dr. Bliuestein’s office directly (https://www.wiips.org I Wisconsin Integrative Pain Specialists I 715 – 600 – 1722 I email@example.com). Dr. Bluestein’s office is not able to fulfill requests to mail printed wallet cards; however, she has given EDS Wellness permission to provide printed copies of her Anesthesia & Surgery Alerts for Ehlers-Danlos syndromes (EDS) and Related Disorders wallet card via mail or in-person to those who submit a request via email or through our contact form. Similarly, you have trouble printing or downloading either the 8X11 document or the scanned wallet card PDF and would like a printed copy(ies) sent to you, please email firstname.lastname@example.org. We are also happy to help provide a set of printed wallet cards to support group leaders and coordinators of other community events to share with members and attendees.
Additionally, the content and document links for The Anesthesia & Surgery Alerts for Ehlers-Danlos syndromes (EDS) and Related Disorders wallet card has been added to EDS Wellness’ Backpack Health Community. We added a share card and related resource links for personal use and to share with your team of providers if necessary. If you haven’t already joined Backpack Health or EDS Wellness’ Backpack Health Community, we would love for you to join us! Joining the EDS Wellness Backpack Health Community provides access to the medical information, guidelines for self-care & living well, and the patient resources we share through the Backpack App.
Anesthesia & Surgery Alerts for Ehlers-Danlos syndromes (EDS) and Related Disorders Wallet Card – Medical Information & Content
EMERGENCY ALERT – Anesthesia / Surgery Alerts
Potential Risks with Ehlers- Danlos syndromes (EDS syndromes (EDS), Mast Cell Activation Syndrome (MCAS)/multiple chemical sensitivities, dysautonomia:
Unstable C spine, TMJD, joint dislocation / subluxation / neurologic injury, occipitalatlantoaxial instability, fragile mucosa/skin, (decreased) C spine mobility, (decreased) oral opening, (increased) lung injury/pneumothorax/shunt with PPV, (increased) ocular injury, arterial/intestinal rupture, poor wound healing
To minimize mast cell activation:
- Use opioid alternatives /adjuncts. Avoid morphine.
- Consider pretreatment with steroid, HI/H2 antagonists and/or leukotriene antagonist
- Treat mast cell flares (flushing, hives, urticaria, edema, abdominal pain, SOB, wheezing) with steroids, HT/H2, O2, nebs and/or epi
- Diphenhydramine infusion may be needed for severe reactions.
- Benzodiazepines helpful (stabilize mast cells).
- Aggressively manage pain, as pain activates mast cells
Name: ________________________________________DOB: _________________________________________
Linda Bluestein, M.D. Links: