List of EDS Wellness’ local & online communities, groups, social networks and those of our affiliates & partner organizations. For additional support or resource links, go to SUPPORT or RESOURCES. To learn more ways to support our mission, vision, programs, or to become a sponsor, partner or affiliate, please visit GET INVOLVED!, SPONSORSHIP, GIVING, or FUNDRAISING. To join Team EDS Wellness, go to Membership. To donate direct, go to DONATE. Join us Socially – visit our SOCIAL page.
Groups & Forums within EDS Wellness’ Website (membership required):
- Forum Groups
- Member Groups
- GAHRD Professional Network Login (a private forum for medical professionals only) – Coming Soon!
Community Members (membership required):
EDS Wellness Membership:
- EDS Wellness Membership Plans
- Memberships for Individuals
- Living Well Membership
- Member For Life Membership
- Memberships for Professionals
- Team EDS Wellness Professional Membership
- Global Alliance for Hypermobility Related Disorders (GAHRD) – Membership & Forum Application
- GAHRD Login – Coming Soon!
- Referral Networks & Group-specific Email Subscriptions (see below)
Local & Online EDS Wellness Support Group Meetings & Classes:
- Mind-Body Strategies for Hypermobility with Chronic Pain
- “Just 5 Minutes” LIVE! – View Schedule or Series 1 Recordings (Series 2 & 3 available also)
- Activity & Interest-specific Meetups & Classes (local & online) – Coming Soon!
- Monthly Virtual Support Group (private) – Coming Soon!
- Virtual Community Forum (public) – Coming Soon!
EDS Wellness Online Community Forums & Social Networks:
- Invisible Illness Forum
- The Mighty – https://themighty.com/partner/edswellness/
- Rare Connect
- Inspire – Coming soon!
- Backpack Health
- Find Us! (social platforms)
EDS Wellness-related Facebook Groups:
- EDS Wellness/Wellapalooza – Events, Classes, Conferences & More!
- Integrative Strategies & Mind-Body Strategies For Ehlers-Danlos & Related Conditions
- The Global Alliance for Hypermobility Related Disorders (GAHRD)
Affiliated Facebook Groups (non-EDS Wellness):
- Restorative Exercise, Natural Movement & PT 4 EDS, Hypermobility & Pain
- The Hypermobile Yogi – A Group For All Hypermobile Yogis (all levels)
- Raising Active & Athletic EDS Kids
- Movement & Hypermobility – Study Group For PTs, Instructors & Providers
- Never Bet Against Occam/Mast Cell Research Study Group
- EDS Athletes
- Dysautonomia Support Network (DSN) Lifestyle Groups (on Facebook)
- Restored Wellness
- Just 5 Minutes
Affiliated Online Social Forums/Networks (non-EDS Wellness):
Affiliated Local Support Groups (non-EDS Wellness):
- EDS DC/VA Local Support Group
- MCAS DC/VA/MD Local Support & Facebook Group (often combines meetings with DSN’s local group)
- DSN Local Groups – List by State
- EDS Awareness – List by State
- EDS Wisconsin – Local Support Groups
- MCAS/Trifecta Patient Support Group in collaboration with Dr. Jyothi Rao of Shakthi Health & Wellness Center (Mount Airy, MD) – Coming Soon!
Affiliated Global Support Groups (non-EDS Wellness):
- EDS UK Support Groups
- Hypermobility Syndromes Association UK (HMSA)
- Vascular Zebras Facebook Group
- EDS Awareness – Local & Global Listing of Local Support Groups
Stay Connected! Community & Group-specific Email/Newsletter Subscriptions:
- General Newsletter & Email Updates Subscription
- GAHRD (members only)
- Team EDS Wellness (members only)
- Provider Referral Network for Patients
- Professional Referral Network for Providers
- Professional Referral Network – Email/Newsletter Subscription
- Healthcare Org & Collaboration Subscription
- LEAD EDS
Click RESOURCES for related links & more! To share an additional resource or to request an update for this page, please fill out the form below.