Join Us Tonight!
Event: EDS & Related Conditions – Current Updates & Live Q&A with Dr. Paldeep Atwal
Facebook Event Page: https://fb.me/e/3iFRbyJHq
Metro DC EDS & HSD Facebook Page: https://www.facebook.com/metro.dc.eds
Date: Wednesday, September 23rd, 2020
Time: 7pm EST
Where: Virtually via Zoom (registration required) & Live! on the EDS Wellness FB page
Zoom Registration Link: https://us02web.zoom.us/webinar/register/WN_JH9Ot2ecTVWWULA9zB1Q6w
Registration is provided via Zoom for the Metro DC EDS & HSD Support group and other attendees who wish to participate more privately and off of Facebook.
(Or, just join us here – the EDS Wellness Facebook Page – Live! at 7pm EST Wednesday evening – September 23rd, 2020: https://facebook.com/edswellness)
Hosted by: Metro DC EDS and HSD Support Group (http://www.eds-dc.org) & EDS Wellness (https://edswellness.org)
Moderator: Kendra Neilsen Myles, Executive Director & Founder, EDS Wellness, Inc.
Event Description: Dr. Atwal will be our special guest for a casual interview (no presentation slides or visuals) on EDS & related conditions, including his experience finding and publishing the 14th type of EDS! We are so thrilled and honored to have the opportunity to speak with Dr. Atwal for the first time and look forward to learning from his experience and work with the EDS community.
Event/Webinar/Virtual Support Schedule: Total approx. 1hr-1.5hrs
– Initial interview (approx. 20-30 mins)
– 20min live community Q&A
– 20min private support group meeting for the EDS DC Support Group (via zoom only – no broadcasted publicly or on social media).
Please direct all virtual event questions or concerns to kendra@edswellness.org.
A newsletter email will also be sent in advance of our virtual event Wednesday evening, including dates for upcoming events and virtual meetings. All are welcome, including family, caregivers, friends, providers, etc.
EDS Wellness Newsletter subscription link: http://eepurl.com/gdf6eb
The recording will be made available after the event as well via both Facebook and the EDS Wellness YouTube Channel
About Dr. Paldeep Atwal:
Dr. Paldeep Atwal has founded The Atwal Clinic in Jacksonville, Florida in which he sees patients for genetic consultations in-person and online through telemedicine. Dr. Atwal is well known to the EDS community as he has helped discover two new genetic connective tissue syndromes, resulting from defects in the FLNA & AEBP1 genes and provides genetic consultations via telemedicine or in-person for many with connective tissue disorders and other rare diseases. Dr. Atwal also has more than 60 publications on human genetics to date.
Patients can schedule appointments and learn more about Dr. Atwal and his clinic online at AtwalClinic.com. You can also email info@atwalclinic.com. Dr. Atwal’s clinic provides genetic consultations and pharmacogenomic consults with our pharmacist for patients interested in learning more about what medications work best for them. In addition, the website, AtwalClinic.com, has helpful resources on how to better manage EDS and other related conditions. The Atwal Clinic Facebook page, blog, Instagram, and Twitter also have helpful resources. (links to be added).
About Kendra Neilsen Myles, CHES, BCPA, RYT 200, RES-CPT:
Kendra holds a Bachelor of Science degree in Public Health and Health Education from the University of Maryland. Her extensive knowledge of the complexities of living with chronic medical conditions and lifestyle management strategies stems from her development and implementation of various health education programs, medical writing and publishing, and working in pharmaceutical and medical sales. She is a health, wellness, and lifestyle expert, community leader, and professional advocate for hypermobility disorders, such as Ehlers-Danlos syndromes (EDS) and related conditions and has been active in the community for over 14years.
It was through Kendra’s life and professional experiences that EDS Wellness, Inc. was founded – a wellness-focused 501(c)(3) nonprofit organization focused on helping individuals living with all hypermobility disorders and related conditions restore function and live well. A few EDS wellness-related initiatives are: Wellapalooza Integrative Wellness Conferences (and retreats), Moving Naturally with Hypermobility Seminars, Just 5 Minutes, Invisible Strength, EDS Ride for a Cause, LEAD EDS & many more!
Professional certifications and training include:
– Certified Health Education Specialist (CHES)
– Board-Certified Patient Advocate (BCPA).
– Yoga Alliance Registered 200hr Yoga Instructor (RYT 200)
– Certified Restorative Exercise Specialist (RES-PT)
To learn more about Kendra or to read her full bio or CV, please visit https://kendraneilsenmyles.com.
Non-EDS Wellness related contact email: Kendra@KNeilsen.com
About EDS Wellness:
EDS Wellness, Inc. is the 1st 501(c)(3) nonprofit focused on mind-body-spirit care for individuals with ALL hypermobility related disorders. EDS Wellness’ mission is to develop integrative strategies for restoring function & living well for all individuals affected by Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions.
EDS Wellness provides virtual and in-person patient health and continuing medical EDUCATION, helps facilitate proper DIAGNOSIS, and implements research-based SOLUTIONS for patients and healthcare providers.
Get Involved! Get Involved Or, submit a volunteer application to join our wellness movement and team! Application Volunteer, Advisory Boards & Board of Directors
Contact info (or use our Contact page):
Info@edswellness.org
Donations: https://edswellness.org/donate (direct), via Facebook & Network for Good, and PayPal Giving.
Other Giving options: https://edswellness.org/giving
Online Store: https://edswellness.org/store
About the EDS DC Support Group:
Metro DC EDS/HSD Support Group is for people with Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders in Northern Virginia, suburban Maryland, and Washington, DC as well as their family, friends, and caregivers.
Website: http://www.eds-dc.org/
Support Group Leader(s): Christina & Danielle
Contact: eds@eds-dc.org
Disclaimer:
Disclaimer: EDS Wellness, Inc. is a registered 501(c)(3) non-profit wellness organization incorporated in the state of Maryland. EDS Wellness, Inc. does not provide medical advice or treatment. We are not a health care provider. It is important to realize that information shared by EDS Wellness, Inc., its affiliates, Board of Directors, Volunteers, Kendra Neilsen Myles, and guest speakers/presenters is not meant to be interpreted as a replacement for proper care from a doctor, therapist, or other health care providers. It is vital that you talk with your health care providers regarding the diagnosis and treatment options for Ehlers-Danlos syndromes (EDS), other connective tissue disorders, and related conditions. Minors should consult with a parent or legal guardian when considering treatment and providers. All participants and viewers assume all risks when attending webinars, discussions, support group meetings, and all other related events.
