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Kendra Neilsen Myles, CHES, BCPA, RYT 200, RES-CPT

Kendra Neilsen Myles, CHES, BCPA, RYT 200, RES-CPT – Executive Director & Founder, EDS Wellness, Inc. & Principal & Owner of KNeilsen, LLC & Sisters Media, LLC

Kendra graduated with a degree in Public Health/Health Education from the University of Maryland in December 2000. While in college, she worked in triage, serving as a patient liaison for the Women’s Health Clinic, and interned as a therapeutic exercise and movement rehabilitation program assistant at Fitness for Health (also known as Bethesda PhysioFitness ). During her senior year, Kendra worked full-time to fulfill her internship requirement through a paid marketing assistant and health education specialist position with Columbia Hospital for Women in Washington, DC. Throughout her 6-month internship, Kendra developed and implemented health education programs for underserved populations, participated in healthcare lobbying efforts, and assisted in the planning and coordination of Columbia Hospital for Women’s Annual Breast Cancer Awards Gala. Post college, she started her professional career as a territory manager for Ortho-McNeil – the women’s health division of Johnson & Johnson Pharmaceuticals. Determined to pave her own career path that helped support her family, Kendra founded a medical sales & marketing support company after the birth of her 1st son in 2005 & subsequent diagnosis of Classical Ehlers-Danlos syndrome (cEDS) – affording her both the opportunity to be more available for her son and the flexibility needed to take care of herself.

For almost 14 years, Kendra has been active in the broader Ehlers-Danlos syndromes (EDS) and related conditions communities, guest speaking for several organizations, coordinating fundraisers to promote awareness & support EDS non-profits, and working closely with community specialists on various patient-focused projects and events. She eventually launched Strength/Flexibility/Health/EDS – a digital wellness magazine for those striving for “strength, flexibility, and health” while living with EDS. Kendra has extensive knowledge on lifestyle management strategies & the complexities of living with chronic medical conditions, and has worked tirelessly to uncover an effective solutions-focused approach to helping facilitate much-needed change. She has advocated for and raised awareness on the importance of proper diagnosis, developed and implemented patient-focused health education & wellness programs, and helped foster collaborative patient/provider relationships. Kendra has also held several continuing medical education activities for healthcare providers and facilitated professional collaborations to improve patient care & outcomes. It was through Kendra’s life and professional experiences, combined with her daily journey to live well, that she founded EDS Wellness, Inc. – the 1st EDS/HSD/Hypermobility 501(c)(3) nonprofit focused on integrative and research-based solutions, and mind-body-spirit care for individuals with ALL hypermobility related disorders. EDS Wellness’ work includes: Wellapalooza Integrative Wellness Conferences (and Retreats!), professional collaborations such as with Clair Francomano, M.D and Deborah Norris, Ph.D. to develop and implement the ‘Mind-Body Strategies for Hypermobility with Chronic Pain’ program – 1st launched in November 2016 at The Mindfulness Center, creating the 1stIntegrative Healing for EDS Brochure, and regularly holding virtual & in-person webinars, workshops, and classes. EDS Wellness’ passion is developing, implementing and sharing integrative solutions to help restore function and living well. Additionally, EDS Wellness is incredibly proud to co-host & co-develop the inaugural event for the new LEAD EDS program – an on-going collaboration with EDS Awareness, providing education & training for all EDS Support Group leaders

Kendra’s love for reading and writing stems from a childhood surrounded by books, spending much of her life in her mother’s bookstores. The granddaughter of a former House and Garden magazine publisher, she combined her passion for serving the EDS community with her strength in medical writing and interest in publishing to co-author the first Ehlers-Danlos syndromes anthology, ‘Our Stories of Strength – Living with Ehlers-Danlos Syndrome.’ Subsequently, Kendra founded Sisters Media, LLC – a media company focused on the publishing of digital and print materials in fields of health, medical, and wellness. On March 15th, 2016, Sisters Media, LLC published ‘Never Bet Against Occam: Mast Cell Activation Disease and The Modern Epidemics of Chronic Illness and Medical Complexity’– written by Lawrence B. Afrin, M.D. Dr. Afrin’s introductory book to mast cell activation disease currently has 187 five-star reviews and has remained one of the top most influential medical & health books published in the last 3 years.

Currently, Kendra runs two small businesses – a strategic healthcare consulting, professional advocacy and solutions-driven wellness company and Sisters Media, LLC (mentioned above), in addition to serving as the Executive Director of EDS Wellness, Inc. She is a Certified Health Education Specialist (CHES), Board Certified Patient Advocate (BCPA), 200hr Certified Yoga Instructor (RYT 200) and recently completed a 2+ year Restorative Exercise Specialist Certification program (RES-CPT) under Katy Bowman of Nutritious Movement. Kendra has learned to utilize her unique combination of personal and professional experiences with small business entrepreneurship and nonprofit development to provide a streamlined focus on strategic solutions for health-focused individuals, professionals, and organizations.

Kendra recently moved to Ijamsville, MD from Bethesda with her husband of 16+ years, her 3 babies (Johann – 14yo, Seamus – 10yo and Hallen – 8yo), and 2 pups – Mush & Else.

Certifications:

  • –  Certified Health Education Specialist (CHES)
  • –  Board Certified Patient Advocate (BCPA)
  • –  200hr Certified Yoga Instructor (RYT 200)
  • –  Certified Restorative Exercise Specialist (RES-CPT)

 

Full Resume/CV – 2018 March – KNMyles CV/Resume

Website: http://KendraNeilsenMyles.com or http://kneilsen.com

Email: kendra@edswellness.org & Phone: 240-687-7791

Connect: Kendra is active on several social media platforms and can be found at Kendra N Myles on Facebook, @KNMyles on Twitter, @kendranmyles & @hypermobileyogi on Instagram, @EDSWellness on Pinterest, and @TheHypermobileYogi on Tumblr

Please note – most services mentioned above are provided outside of EDS Wellness; however, some are available under EDS Wellness as well. Limited professional and individual services are as part of a collaborative project or on a sliding fee scale under EDS Wellness – availability depends on current project commitments, scheduling, and funding. The contact form on the EDS Wellness website can be used to submit questions or an inquiry about individual and professional services and collaboration – or use the form below. 15-minute consult appointments are also available.

 

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