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The content shared throughout the EDS Wellness site is currently being edited and updated to reflect the revised diagnostic criteria for all Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) published on March 15th, 2017. We’ve also been working to add more tangible resources to the EDS Wellness website, such as ‘The Global Alliance for Hypermobility Spectrum Disorders Providers (GAHSDP),’ and an e-learning platform that wil allow us to continue broadening the scope of available information and resources for both patients and healthcare providers. If you have questions concerning the content contained on our site or other related questions, please email info@edswellness.org.

What are Ehlers-Danlos syndromes (EDS)?

Once you have received an EDS diagnosis or even if you think you may have EDS, many people will ask, “What are Ehlers-Danlos syndromes?”  Having knowledge about what EDS is and how it may “look” both on the outside and on the inside of the body, is one the best things that someone new to EDS can do for themselves.  Taking the time to gain a strong understanding of EDS, has helped numerous people find the appropriate treatments and therapies, as well as learn ways to handle the different aches, pains and issues that may arise.  Ehlers-Danlos syndrome (EDS) is a group of heritable connective tissue disorders caused by various genetic defects to the structure and function of the collagen protein used to make our connective tissues. These disorders can cause a wide variety of complications throughout all body systems…Learn More

A Message From Our Executive Director & Founder – Kendra Neilsen Myles, CHES, BCPA, RYT 200, RES-CPT

June 10th, 2019 I couldn't be more thrilled to have the EDS Wellness site back up. While it's still a work in progress and there's still a lot left to be done, we will be forever grateful for the $1000 grant we received earlier this month as part of a...

Ehlers-Danlos syndromes (EDS) Organization to Offer Community Members Health Data Management Tool

 Backpack Health platform empowers Ehlers-Danlos syndromes & related conditions community with enhanced data access and ownershipBethesda, MD and Dover, MA — May 22, 2019 — EDS Wellness has partnered with Backpack Health, LLC to provide individuals,...

The ‘Invisible Strength – Sharing Stories of Hope & Strength’ Podcast with Arisen Strength – Thursday, May 31st, 2018 at 8pm EST!

EDS Wellness is thrilled to partner with Shane of the Arisen Strength Motivational Podcast for a special event celebrating another fantastic EDS Awareness Month! We will be co-hosting ‘Invisible Strength - Stories of Hope, Strength & Awareness’ with Shane Live! on...

Genetic Testing for EDS: Online Q&A with Prevention Genetics, EDS Wisconsin & EDS Wellness – Friday, May 25th, 2018!

Do you have questions about how to be genetically tested for the BRAND NEW 45 gene panel for Ehlers-Danlos syndromes? Join EDS Wisconsin, EDS Wellness & PreventionGenetics for an open Q&A - broadcasted LIVE -- to discuss the NEW collaboration concerning...

Join Us TODAY at 12pm for ‘The Evidence-basis for Mindfulness in Chronic Pain & Illness’ with Dr. Deborah Norris! 

Our 2018 Webinar Series continues today at 12pm EST with Deborah Norris, Ph.D. - Founder of The Mindfulness Center in Bethesda, Maryland. Read more about today's event here.  EDS Wellness is thrilled to have Dr. Norris join us again for our 2018 speaker line-up! It's...

EDS Wellness HelpLine

Contact Form

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For general questions regarding Ehlers-Danlos syndrome (EDS), you may email one of our Helpline volunteers at helpline@edswellness.org, or use the contact submission form below. We aim to respond within 24-48hours. To learn more about EDS Wellness’ Helpline, please go to About the EDS Wellness HelpLine.

The EDS Wellness HelpLine phone line is available on certain days each week, based on the availability of our volunteers. The HelpLine also offers limited one on one private calls, scheduled in 15-minute time slots. Please make sure to check when the HelpLine phone line is open, as the schedule changes each week. To schedule a HelpLine appointment, please click below to schedule a phone appointment.

RESOURCES AND MATERIALS

EDS Wellness collaborates with other organizations and healthcare practitioners on various print and digital media projects associated with Ehlers-Danlos syndrome (EDS) and related conditions, to provide information and resources Read More…

PROFESSIONAL SPEAKING AND TRAINING

Professional speaking, training, and education on Ehlers-Danlos syndrome (EDS), other hypermobility syndromes, connective tissues disorders, and related chronic medical conditions. Additionally, EDS Wellness collaborates with Read More…

PATIENT AND HEALTH EDUCATION

Health education and program development services are primarily focused on Ehlers-Danlos syndrome (EDS), other hypermobility syndromes, connective tissues disorders, and related chronic medical conditions. Additionally…Read More…

DIGITAL AND PRINT MEDIA

EDS Wellness collaborates with other organizations and healthcare practitioners on various print and digital media projects associated with Ehlers-Danlos syndrome (EDS) and related conditions, to provide information and…Read More…

EDUCATIONAL VIDEOS AND VIDEO SERIES

EDS Wellness collaborates with other organizations and healthcare practitioners on various educational video and video series projects associated with Ehlers-Danlos syndrome (EDS) and related conditions, to provide…Read More…

CONFERENCES AND RETREATS

EDS Wellness collaborates with other organizations and healthcare practitioners on integrative health and wellness conferences and retreats associated with Ehlers-Danlos syndrome (EDS), other hypermobility syndromes…Read More…

DIGITAL AND PRINT MEDIA

EDS Wellness collaborates with other organizations and healthcare practitioners on various print and digital media projects associated with Ehlers-Danlos syndrome (EDS) and related conditions, to provide information and…Read More…

WEBINAR, PODCAST AND SEMINARS

EDS Wellness collaborates with other organizations and healthcare practitioners on webinars, podcasts, and seminars associated with Ehlers-Danlos syndrome (EDS), other hypermobility syndromes, and other chronic medical…Read More…

EDS WELLNESS ON INSTAGRAM

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