List of EDS Wellness’ Community Resources & Helpful Links. For additional support or resource links, go to SUPPORT or RESOURCES. To learn more ways to support our mission, vision, programs, become a sponsor, partner or affiliate, or to join Team EDS Wellness, go to GET INVOLVED! For more giving options, go to GIVING or DONATE to give direct.
Resources and links are being added back to the site and to this page regularly as we work through updating content, pages, and posts. This page is being contiuously updated and links will be updated soon!
I need help for:
A Patient or Client:
- Medical Info
- Diagnosis Information
- Community and Groups
- Support
- Resources
- Programs
- HelpLine
A Provider or Healthcare Professional:
- GAHRD
- Resource for Medical Professionals
- Referral Network
- Study Group on Facebook
- 2017 Physicians Learning Conference
- Online CMEs
A Student or School-Aged Child:
- Kids & Teens
- 51 Tips for Parents of EDS Kids…..
- Printables/Downloads
- 504 and IEP
- Stephanie’s Webinar
Young Adult/Career Support:
- Dr. Christine Hale’s Presentation on Returning to Work and Career
A Wellness Educator or Movement Instructor:
- GAHRD
- Study Group on Facebook
- Referral Network
- Hypermobile Yogi
- Hypermobile Dancer
- EDS Athletes
- PowerPoint for RES & Hypermobility
- Document/Workbook for RES & Hypermobility
- The Fibro Guy
- Yoga Tune-Up
A Loved One:
- Guide to Daily Support
- Living with EDS stories
Myself:
- Self-Care
- Our Stories of Strength
- Listen and Read
- Podcast
- Videos
- Submit Your Story!
- Membership
- LEAD EDS
- HelpLine
Restoring Function:
- Mind-Body Movement for Hypermobility and Related Disorders (virtual classes)
- #EDS Fit Tips
- #Just5Minutes Daily Challenge
- Just 5 Minutes Class Recording
- Just 5 Minutes Class Resources
- Gentle Hatha Yoga Recordings
- Chair Yoga Class Recording
- Gentle Yoga & Restorative Exercise Blended Class Recordings
- SFHEDS at Home Workouts
- Move Mindfully
- PT/OT Resources & Videos
- PT with Kids
- YouTube Channel
Living Well:
- Integrative Healing Brochure
- Top 10 Nutrition Tips
- The EDS Spiral
- Life Hacks
- YouTube Channel
Mind-Body:
- Mind-Body Strategies for Living with Hypermobility and Chronic Pain Program
- Mind-Body Strategies with Hypermobility with Chronic Pain Program Video
- Mind-Body Strategies Program Abstract Submitted and Accepted for Poster Presentation at the 2018 International Congress on Integrative Medicine and Health Academic Consortium!
- Mindfulness for Management of Chronic Pain
Integrative Medicine:
- Integrative Healing with EDS Brochure
- Wellapalooza 2016: Approaches to Integrative Health for Persons with Ehlers-Danlos syndrome’ with Clair Francomano, M.D.
- Wellapalooza 2017: The 2017 International EDS Classification and Approaches to Integrative Health for Persons with Ehlers-Danlos syndrome with Clair Francomano, M.D.
- Wellapalooza 2017: Integrative Options for Managing Hypothyroidism, Adrenal Fatigue, and their Role in Chronic Illness with Mary Shomon, Author & Thyroid Patient Advocate
- Webinar 10: An Integrative Medicine Approach to Mast Cell Activation Syndrome (MCAS) with Dr. Tania Dempsey
- 2018 Video Webinar Program: Integrative Strategies for Managing Hypermobility Disorders, such as EDS, HSD, and Related Conditions, Restoring Function and Living Well
- 2019 Video Webinar Program: Integrative Strategies for Managing Hypermobility Disorders, such as EDS, HSD, and Related Conditions, Restoring Function and Living Well
- Interview with Dr. Linda Bluestein on her new Integrative Pain Management Practice and Strategies to Manage Chronic Fatigue, Pain and other Symptoms Related to Hypermobility Disorders and Ehlers-Danlos syndromes
- Craniosacral Therapy and Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD)
- New Education/Training Program for Healthcare Providers Wanting to Learn Very Practical Integrative Medicine Skills
I Want to:
Learn About Hypermobility
Take the Generalized Joint Hypermobility Questionnaire
Read About Ehlers-Danlos syndromes (EDS)
Understand Mast Cell Disorders/MCAS
Live Well
Restore Function
Move More & Move Better
Find a Provider
Email the HelpLine
Get Involved
Fundraise
Share My Story or Submit Guest Post
Find a Support Group
Start a Nonprofit (or support group)
Complete Community Survey
Submit Program/Course/Class Feedback
Submit Name for Referral Network/Request Website or Community Resource (or see form below
EDS Wellness Memberships:
Memberships for Medical Professionals
Top Resources Medical Professionals
Top Articles
Key Resources:
Integrative Healing for EDS Brochure
Generalized Joint Hypermobility Questionnaire
‘Our Stories of Strength – Living with EDS’
Videos & Recordings:
List of Courses & Program Recordings by Event or Title:
2018 Video Webinar Series
2019 Video Webinar Series
Ask the MCAS Expert LIVE!
The Business Side of Giving Back
Mind-Body Strategies for Hypermobility with Chronic Pain
The Hypermobile Yogi
Wellapalooza 2015
Wellapalooza 2016
Wellapalooza 2017
Programs:
2018 Webinar Program
2019 Webinar Program
Just 5 Minutes
Mind-Body Strategies for Hypermobility & Chronic Pain
LEAD EDS
Wellapalooza
Integrative Healing for EDS/HSD – Coming Soon!
EDS/HSD “Bootcamp”
EDS Athletes & At-Risk Athletic Populations
The Hypermobile Yogi – Yoga for Hypermobility & Ehlers-Danlos syndromes (EDS)
Moving Naturally with Hypermobility
Ask the MCAS Expert – LIVE!
EDS Wellness Resources/Website Navigation:
Medical
Research
Kids & Teens
Get Involved!
Previous Events
Newsletter Archives
Community Surveys & Feedback Forms
Documents & Forms
EDS/Hypermobility Blogs & Podcasts
Community Stories (Our Stories of Strength)
Life Hacks
Media & Press