Suicide Hotline
1-800-273-8255
EDS and Hypermobility Organizations:
EDS Wellness
http://edswellness.wpengine.com
The Hypermobility Syndromes Association
http://hypermobility.org
The Ehlers-Danlos Society
http://ehlers-danlos.com
EDS 2016 International Symposium
http://eds2016.org/
EDS Awareness
http://chronicpainpartners.com
Ehlers-Danlos Syndrome Network Cares
http://www.ehlersdanlosnetwork.org/
EDS Today
http://edstoday.org/
Center for Ehlers-Danlos Syndrome Alliance
https://www.cedsa.org/
Life as a Zebra Foundation
http://www.zebranation.org/
EDSers United Foundation
https://www.edsers.com/
Atlantic Ehlers-Danlos Syndrome Society (Nova Scotia)
http://www.atlanticedssociety.ca/
Ehlers-Danlos Syndrome Canada
http://www.ehlers-danlossyndromecanada.org/home.htm
Ehlers-Danlos Support Group (UK)
http://www.ehlers-danlos.org/
Ehlers-Danlos Syndrome (Netherlands)
http://www.ehlers-danlos.nl/site/index.cfm
Ehlers-Danlos Syndrome (Swiss)
http://www.swiss-eds.ch/
Ehlers-Danlos Syndrome (Sweden)
http://ehlers-danlos.se/
Ehlers-Danlos Syndrome (Denmark)
http://ehlersdanlos.dk/
Ehlers-Danlos Syndrome (France)
http://www.afsed.com/
Ehlers-Danlos Syndrome (Norway)
http://www.eds-foreningen.no/
Irish EDS & HMS
http://irishedsandhms.ie/
India EDS & HMS – http://jhs-heds-india.blogspot.com
Information for Healthcare Professionals – http://strengthflexibilityhealtheds.com/eds-information-and-resources-for-healthcare-professionals/
Information resources for Patients – http://strengthflexibilityhealtheds.com/eds-information-resources-and-news-for-patients/
Blood volume testing – http://my.clevelandclinic.org/heart/services/tests/nuclear/bloodvolumetesting.aspx
Good North American Doctors – https://www.facebook.com/groups/1438285386415297/
Good European Doctors – https://www.facebook.com/groups/372374862916395/
Good Australian Doctors – https://www.facebook.com/groups/287952358017187/
Links to information and organizations that focus on conditions related to hypermobility and EDS, or focus on other connective tissue disorders:
Dysautonomia International – http://www.dysautonomiainternational.org
The John Ritter Foundation – http://johnritterfoundation.org
Pain Down There – http://www.paindownthere.com
International Pain Foundation – https://powerofpain.org
For Grace – http://www.forgrace.org
Aortic Dissection – http://www.thedoctorstv.com/videolib/init/1548
Marfan Syndrome – http://www.marfan.org/
Osteogenesis imperfecta – http://www.oif.org
Epidermolysis bullosa – http://www.debra.org/whatiseb
Stickler Syndrome – http://sticklers.org
Alport Syndrome – http://www.alportsyndrome.org/
Loeys–Dietz Syndrome – http://loeysdietz.org/
Williams Syndrome – https://williams-syndrome.org/
Cutis Laxita – http://www.merckmanuals.com/home/children-s-health-issues/hereditary-connective-tissue-disorders/cutis-laxa
Ectopia Lentis – http://www.marfan.org/ectopia-lentis-syndrome
Familial Thoracic Aneurysm and/or Dissection – http://www.marfan.org/familial-aortic-aneurysm
Fragile-X Syndrome – http://www.fragilex.org/
MASS Phenotype – http://www.marfan.org/mass-phenotype
Mitral Valve Prolapse Syndrome – http://mitralvalveprolapse.com/