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EDS Wellness

MOVEMENT. MINDFULNESS. NUTRITION.
Restore FunctionLive Well

Who We Are

EDS Wellness is on a mission to provide virtual and in-person patient and continuing medical EDUCATION, to facilitate proper DIAGNOSIS for ALL hypermobility disorders and related conditions, and to develop and implement research-based SOLUTIONS for patients and healthcare providers.

Learn By Doing

Our NEW eLearning platform has launched!  EDS Wellness is thrilled to finally share the 1st (& only) e-Learning platform devoted to providing EDUCATION & Integrative SOLUTIONS for restoring function and living well. We hope to see you – virtually – in our online classroom/studio during live broadcasts and through courses on our new eLearning platform.

Mission

What We Do

EDS Wellness is a 501(c)(3) non-profit organization promoting health education, integrative healthcare, and wellness strategies for restoring function & living well with all hypermobility disorders, including Ehlers-Danlos syndromes (EDS) & hypermobility spectrum disorders (HSD), and related condtions. EDS Wellness develops and implements virtual & in-person educational programs, resources & related materials on various movement, nutrition, and mind-body strategies for patients, providers, caregivers and educators.

A Message

From Our Executive Director & Founder

"I couldn't be more thrilled to have the EDS Wellness site back up. While it's still a work in progress and there's still a lot left to be done, we will be forever grateful for the $1000 grant we received earlier this month as part of a charitable fund donation from an amazing donor.

This.has.never.happened!

How incredibly exciting to receive a gift so significant - and at just the time we needed it most! Thank you doesn't seem to express our incredible gratitude for receiving such a substantial contribution & grant for EDS Wellness' “area of most need."

Read Full Letter

 

- Kendra Neilsen Myles, CHES, BCPA, RYT 200

Education

Learn With Us!

Our Team

Volunteer Spotlight

Dineo Moja - EDS Wellness' Summer of 2018 Intern

Leadership
Board of Directors
Advisory Boards

Medical, Professional & Patient Advisory Boards

Volunteer Leaders
Partners

Nonprofit partners, donors and sponsors

Speakers

 

Interns

Dineo Moja

Team Expansion

Expanding Our Team to Include Wellness Ambassadors, Patient Experts, Local Support Groups & a Chapter Network. Please View Applications & Forms. 

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News

Updates & Annoucements

EDS & Related Conditions – Current Updates & Live Q&A with Dr. Paldeep Atwal

Join Us Tonight! 

Event: EDS & Related Conditions – Current Updates & Live Q&A with Dr. Paldeep Atwal

Facebook Event Page: https://fb.me/e/3iFRbyJHq

Metro DC EDS & HSD Facebook Page: https://www.facebook.com/metro.dc.eds

Date: Wednesday, September 23rd, 2020

Time: 7pm EST

Where: Virtually via Zoom (registration required) & Live! on the EDS Wellness FB page

Zoom Registration Link: https://us02web.zoom.us/webinar/register/WN_JH9Ot2ecTVWWULA9zB1Q6w

Registration is provided via Zoom for the Metro DC EDS & HSD Support group and other attendees who wish to participate more privately and off of Facebook.

(Or, just join us here – the EDS Wellness Facebook Page – Live! at 7pm EST Wednesday evening – September 23rd, 2020: https://facebook.com/edswellness)

Hosted by: Metro DC EDS and HSD Support Group (http://www.eds-dc.org) & EDS Wellness (https://edswellness.org)

Moderator: Kendra Neilsen Myles, Executive Director & Founder, EDS Wellness, Inc.

What is the Beighton Score?

The Beighton Score is a clinical tool to assess Generalized Joint Hypermobility (GJH).

The Beighton Score has been used for many years as an indicator of joint hypermobility syndrome. The Beighton Score can quickly and easily assess generalized joint hypermobility using a 9-point scale. It is used solely as a clinical resource and screening tool. Joints included are the thumb, spine, elbow, knee, and the base of the pinky finger. If needed, a goniometer can also be used to measure a joint’s angle to determine its range of motion.

Why Hypermobility Matters

Stats & Facts: 

10% of Population Hypermobility
Estimated 1/500 EDS/JHS combined (HSD/hEDS 2017 Classification – 2019 UK – https://bmjopen.bmj.com/content/9/11/e031365)
Large Gender Difference – 70% Female
8.5y delay to the average age of dx between women & men
Delayed dx in children is linked to trauma, misdiagnosis, abuse and disease progression
Early Diagnosis is Critical – Prevention, Comorbid Conditions Presentation, & long-term management
Genetics: 

Hypermobility stems from the genetics of our connective tissues — i.e. how our bodies are built according to DNA. And …. connective tissue is e-v-e-r–y-w-h-e-r-e.  It’s the “glue” that holds our bodies together. Hypermobility can also be acquired. Overuse, overstretching, medication reactions, environmental triggers, and several types of auto-immune diseases can also play a role in the “hyperlaxity” of someone’s joints — and all are commonly associated with connective tissue inflammation, pain, and weakness.

EDS Wellness is a premier global nonprofit organization on a mission to help those living hypermobility disorders & related conditions restore function & live well.

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Our amazing donors, sponsors & nonprofit partners!

Thank you!

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Mailing Address:
5213 Fairgreene Way. Ijamsville, MD 21754

Google Voice: 434-829-2185

Email: info@edswellness.org

Tax ID/EIN: 81-1592109

Shifting the Standard of Care Paradigm

EDS Wellness is a 501(c)(3) nonprofit located in the state of Maryland, USA. We are a global public health and wellness-minded charitable organization focused on developing health education programs, events and support materials, for patients, providers, caregivers & educators. EDS Wellness' work is centered around research-based integrative health strategies to help individuals restore function & live well with ALL hypermobility disorders and related conditions. EDS Wellness utilizes social media, live broadcasting & virtual marketing strategies to reach our global patient and medical communities. Learn more about What We Do